Main data sources

Demographics, vital status, and migration from the Danish Civil Registration System since 1968
Inpatient, outpatient, and emergency hospital encounters, including diagnoses and procedures, and associated costs, from the Danish National Patient Registry since 1977
Data on inpatient, outpatient, and emergency psychiatric encounters from the Danish Psychiatric Central Research Register since 1970
Outpatient dispensings of all prescribed medicines, including data on active substance, days supplied, and route of administration from the Danish National Prescription Registry since 1995
All births (approximately 60,000 annually) including data on main birth outcome and linkage to parental data from the Danish Medical Birth Registry since 1973
Incident primary cancers from the Danish Cancer Registry since 1987
Pathology data, including diagnoses (such as presence of cancer biomarkers), and access to the original tissue, from the Danish Pathology Registry and Patobank since 1997
Laboratory data, including date and result of test, from the Clinical Laboratory Information System “LABKA” since 1990
High quality clinical data, including treatment and disease progression, from the dozens of Danish Clinical Quality Databases, covering many main disease areas
Danish National Health Surveys
Data on income and education from the Integrated Database for Labour Market Research (IDA) since 1980

Based on unique personal identifiers, data from all registries can be linked. They can also be combined with primary data in projects collecting, for instance, questionnaire data. Examples of such studies include the Soon Pregnant Cohort study of pregnancy planners and the Scandinavian Cohort of Osteonecrosis of the Jaw.

Registry descriptions

See our book Use of Medical Databases in Clinical Epidemiology for detailed descriptions of key registries

Revised 24.03.2023

Helle Vester