Data collection and data management

We have developed a unique system encompassing linkable high-quality healthcare data from multiple sources. Medical registry data and routinely collected administrative data are loaded continuously into this system using standard file formats and uniform data file structures. Data are fully anonymized and pose no security risks for individual patients. For each project, we:

  • Link records from multiple and diverse data sources
  • Develop and maintain study-specific databases for primary data collection if needed (using licensed and validated Research Electronic Data Capture (RedCAP) software)
  • Document, control, access, and maintain study databases according to the industry standard
  • Provide options for secure data sharing